It’s time for another ACE SMA party!
Click here to book your tickets
We debated long and hard about the format of the party, we asked friends, family and previous attendees and the resounding feedback was “do the same again!” so that’s exactly what we are going to do! If it ain’t broke, don’t fix it!
Same venue, same format, same food, same booze, same music, same great Belgium professor…you may even end up sitting next to the same person, but it was so much fun last time, there is no reason it can’t be as much fun this time!
However, there is one crucial change we have decided to make this time around; there won’t be an auction. Instead we will be organising the raffle to end all raffles with a small number of mega prizes, with a limited number of tickets and a very high chance of winning. Plus we will try and work out some other excuses to help you donate some money on the evening- it is for charity after all!
And on that point, the money that was generously donated last time around has been put to fantastic use. We have now launched a world first clinical research programme with Oxford University. Children have already been recruited to participate in this very exciting programme of advanced and ambitious physiotherapy to prove the importance of it to children with SMA. Not only that but we managed to leverage our donation to persuade Novartis, Biogen and Roche to fund the program too as well as another brilliant SMA charity Rally Round Rupert. https://www.rallyroundrupert.org.uk
We can’t wait to tell you all about it and other exciting plans on 28th of September.
As before 100% of the money raised will ALL go to the charity. Therefore please buy your tickets and invite all your friends!
www.uk.givergy.com/acesma2024